What is hospice volunteering? Understand what hospice volunteering is, how volunteers can use their time and talents when serving, and the impact of hospice volunteers on the lives of patients, caregivers, and families on the end-of-life journey.

Understanding Hospice Volunteering

Published September 25th, 2015

The spirit of hospice volunteering is borne from a genuine desire to give comfort, peace, and care to patients, caregivers, and families during the end of life. Hospice volunteers have a tremendous impact on the lives of the patients that they serve, the hospice team of which they are a part, and the families and friends of the terminally ill. Understanding the role of hospice volunteers, the ways in which volunteers can serve, and the impact that volunteering has on the lives of the patient, the patient’s family, and the volunteer, can better equip those who are interested in becoming a hospice volunteer.

The presence and service of hospice volunteers is targeted towards ultimately providing patients, caregivers, and families with the most comfortable and compassionate end-of-life experience possible.

Why Hospice Organizations Need Volunteers

The value of hospice volunteers cannot be overstated. Volunteers are commonly perceived by hospice patients and families as ordinary members of their local community. This relationship provides a feeling of normality for patients, as well as patients’ families and friends. Volunteers often connect with patients on a deep, personal level, which provides the hospice care team with valuable insights concerning the overall impact of the level of comfort and care that is provided.

Medicare-certified hospice programs are also federally mandated to integrate hospice volunteers into administrative or patient services. The United States government requires that the total number of hours that hospice volunteers contribute must equal at least 5% of the total number of patient care hours provided by paid hospice employees and contract staff.

Hospice Volunteer Training

Before beginning volunteer service, hospice volunteers are often provided with training. This training prepares volunteers for the administrative services they may perform for the hospice, or the ways in which they will be directly assisting patients, caregivers, and families. Though each hospice organization may have a unique training program, most hospice volunteer training includes:

  • Understanding the hospice philosophy of care

  • How to know boundaries as a volunteer when interacting with patients and families

  • An overview of the spiritual, emotional, and physical needs of a patient and the patient’s family during the end-of-life journey

  • Understanding the services offered by the hospice organization

  • How to communicate with patients, their families, and friends

  • How to assist patients and families with grief, loss, and bereavement

  • Understanding patient and health information privacy

The Common Traits of Effective Hospice Volunteers

A part of what makes hospice volunteers so valuable, and such impactful members of a patient’s care team, is the unique life perspective and personality they offer. Though each volunteer is unique, there are several common traits that are indicative of an effective hospice volunteer:

  • A spirit of compassion and understanding towards those who are on the end-of-life journey

  • Respect for all ways of life, cultural customs, and religious views

  • Keen understanding of personal limits

  • The ability to listen and be comfortable in silence

Effective hospice volunteers recognize that their role is one of compassionate service. The presence and service of hospice volunteers is targeted towards ultimately providing patients, caregivers, and families with the most comfortable and compassionate end-of-life experience possible.

Types of Hospice Volunteering

There are many ways in which hospice volunteers lend their time and effort to hospice organizations. Whether helping support patients, caregivers, and families directly, or by assisting the hospice with administrative work, there are always tasks in which the unique talents of each volunteer can be put to effective use. The ways in which hospice volunteers provide service are largely grouped into two categories: direct care volunteering and indirect care volunteering.

Direct Care Volunteering

Hospice volunteers who work directly with patients, caregivers, and families are considered direct care volunteers. Direct care volunteers can provide support and comfort to patients and families in many ways. Common areas where direct care volunteers can provide assistance are:

  • Preparing meals for patients and families

  • Providing transportation to patients, families, and the children of the families

  • Assisting in light household chores

  • Sitting with patients to provide companionship and a comforting presence

  • Playing music for patients to provide a soothing and joyful atmosphere

Indirect Care Volunteering

For volunteers who prefer not to work with patients directly, their time and effort can be put to use in assisting the hospice organization with administrative and general office tasks. Common tasks where indirect care volunteers provide assistance are:

  • Helping prepare mailings and newsletters for community outreach

  • Assisting in general data entry tasks and other clerical duties

  • Helping in preparations and setup for special community events and outings

Whether opting to be directly or indirectly involved with patient and family care, hospice volunteers are able to use their unique talents and skill sets to support hospice organizations and provide patients and families with a more comfortable end-of-life experience.

The Impact of Hospice Volunteers

Hospice volunteers help provide patients and families with compassionate care and support during the end-of-life process. The level of personal connection and support that volunteers provide allows for a greater level of end-of-life care satisfaction for patients enrolled in hospice care. According to a 2010 National Hospice and Palliative Care Organization (NHPCO) study, hospice programs with higher levels of direct care volunteer involvement consistently report higher levels of care satisfaction from the bereaved families of hospice patients.

Unadjusted Results of Hospice Care Reported as Excellent in Association with Volunteer Hours per Week

The Benefits of Becoming a Hospice Volunteer

While hospice volunteers have a tremendous impact on the lives of the patients, caregivers, and families they serve, the volunteers themselves also benefit from the giving of their time and talents. Hospice volunteers, particularly those who work directly with patients and families, commonly report:

  • A greater appreciation for life and understanding of what is truly important

  • A deeper understanding and acceptance of the role of death in the process of life

  • An enriched understanding of different cultures and life perspectives

  • A sense of fulfillment and contribution to the community

Getting Started as a Hospice Volunteer

For those seeking to volunteer at a hospice program, contacting local hospice organizations is a great way to get started. Local hospices can assist prospective volunteers by providing information and resources concerning becoming a direct or indirect hospice volunteer. The NHPCO offers a free, online hospice locator tool that can help those interested in hospice volunteering begin the search for a local hospice program.

The desire to give time and talents freely to those on the end-of-life journey emanates from a heart of compassion and a spirit of giving. Whether providing direct or indirect support, hospice volunteers are an integral part of the hospice team responsible for providing quality care and support. Hospice volunteering allows exceptional, caring individuals to use their gifts and skills to help provide patients, caregivers, and families with the most peaceful and comfortable end-of-life experience possible.

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References

  1. Pesut, Barbara, Brenda Hooper, Suzanne Lehbauer, and Miranda Dalhuisen. "Promoting Volunteer Capacity in Hospice Palliative Care: A Narrative Review." American Journal of Hospice and Palliative Medicine 31.1 (2012): 69-78. Sage Journals. SAGE Publications Ltd. Web. <http://ajh.sagepub.com/content/31/1/69.full.pdf>.
  2. Morris, Sara, Amanda Wilmot, Matthew Hill, Nick Ockenden, and Sheila Payne. "A Narrative Literature Review of the Contribution of Volunteers in End-of-life Care Services." Palliative Medicine 27.5 (2012): 428-36. European Association for Palliative Care. SAGE Publications Ltd. Web. <http://www.eapcnet.eu/LinkClick.aspx?fileticket=A1ej7gLQe4s=&tabid=200>.
  3. Block, Eve, David Casarett, Carol Spence, Pedro Gozalo, Stephen Connor, and Joan Teno. "Got Volunteers? Association of Hospice Use of Volunteers With Bereaved Family Members’ Overall Rating of the Quality of End-of-Life Care." Journal of Pain and Symptom Management 39.3 (2010): 502-06. National Hospice and Palliative Care Organization. Elsevier Inc. Web. <http://www.nhpco.org/sites/default/files/public/JPSM/JPSM_Volunteers.pdf>.
  4. Candy, Bridget, Rachel France, Joe Low, and Liz Sampson. "Does Involving Volunteers in the Provision of Palliative Care Make a Difference to Patient and Family Wellbeing? A Systematic Review of Quantitative and Qualitative Evidence." International Journal of Nursing Studies 52.3 (2014): 756–768. International Journal of Nursing Studies. Elsevier Ltd. Web. <http://www.journalofnursingstudies.com/article/S0020-7489(14)00210-7/pdf>.
  5. Burbeck, Rachel, Bridget Candy, Joe Low, and Rebecca Rees. "Understanding the Role of the Volunteer in Specialist Palliative Care: A Systematic Review and Thematic Synthesis of Qualitative Studies." BMC Palliative Care 13.3 (2014). BMC Palliative Care. Web. <http://www.biomedcentral.com/1472-684X/13/3>.

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